[Ebook] ➦ A Life Everlasting By Sarah Gray – Motyourdrive.co.uk

A Life Everlasting pdf A Life Everlasting , ebook A Life Everlasting , epub A Life Everlasting , doc A Life Everlasting , e-pub A Life Everlasting , A Life Everlasting f5091eb2dd8 A Donor Mother S Powerful Memoir Of Grief And Rebirth That Is Also A Fascinating Medical Science Whodunit, Taking Us Inside The World Of Organ, Eye, Tissue, And Blood Donation And Cutting Edge Scientific ResearchWhen Sarah Gray Received The Devastating News That Her Unborn Son Thomas Was Diagnosed With Anencephaly, A Terminal Condition, She Decided She Wanted His Death And Life To Have Meaning In The Weeks Before She Gave Birth To Her Twin Sons In , She Arranged To Donate Thomas S Organs Due To His Low Birth Weight, They Would Go To Research Rather Than Transplant As Transplant Donors Have The Opportunity To Meet Recipients, Sarah Wanted To Know How Thomas S Donation Would Be UsedThat Curiosity Fueled A Scientific Odyssey That Leads Sarah To Some Of The Most Prestigious Scientific Facilities In The Country, Including Harvard, Duke, And The University Of Pennsylvania Pulling Back The Curtain Of Protocol And Confidentiality, She Introduces The Researchers Who Received Thomas S Donations, Held His Liver In Their Hands, Studied His Cells Under The MicroscopeSarah S Journey To Find Solace And Understanding Takes Her Beyond Her Son S Donations Offering A Breathtaking Overview Of The World Of Medical Research And The Valiant Scientists On The Horizon Of Discovery She Goes Behind The Scenes At Organ Procurement Organizations, Introducing Skilled Technicians For Whom Death Means Saving Lives, Empathetic Counselors, And The Brilliant Minds Who Are Finding Surprising And Inventive Ways To Treat And Cure Disease Through These Donations She Also Shares The Moving Stories Of Other Donor FamiliesA Life Everlasting Is An Unforgettable Testament To Hope, A Tribute To Life And Discovery, And A Portrait Of Unsung Heroes Pushing The Boundaries Of Medical Science For The Benefit Of All Humanity


10 thoughts on “A Life Everlasting

  1. says:

    In 2009, Sarah Gray, 35, and her husband Ross, were ecstatic to learn that she was pregnant with twins The road to parenthood opened ahead of them But it was not long before Gray would be informed that one of her twins had a rare condition, anencephaly, a failure of the skull and brain to form properly, leaving the developing brain unprotected The causes of this rare condition are not well understood The diagnosis was grim Thomas Ethan Gray s life, if he got to have one at all, would be a very short one Sarah Gray from Ted talksGray was not your garden variety horrified parent to be She was working at the time at the National Institute for the Severely Disabled, where she had established the AbilityOne Speakers Bureau, helping secure speaking opportunities for disabled people of diverse sorts, and helping them craft their stories Her mother was a nurse in Boston She experienced the devastation anyone in her position would suffer But Gray s professional experience and connections, and access to medical intel from within her own family gave her a firmer base of knowledge from which to inform her response When she realized that it would be possible for some of Thomas s organs to be used to help others she set about making it happen, giving the loss she and her husband would experience and the short life her baby would know new meaning.Gray s case was unusual in that Thomas s donations were used for research, not transplant After a short period of time, she grew curious about how they were being put to use, so began tracking where they had gone Once she identified the places, she started calling and asking to tour their facilities, a totally new thing for those labs It is not unusual for the families of transplant donors to contact recipients, sometimes building lasting relationships, but it was pretty much unheard of for the families of organ donors to get in touch with research labs to see how the donations were being used Thomas Ethan Gray from RadiolabOne thing Gray found on this quest was that the researchers were thrilled to hear from a donor s family, heartily welcoming the interest Unlike the transplant world, there is almost never a face or a name to put to a research donation But lives are saved as a result of such gifts, particularly when there is an acute shortage of research material, which there often is There are several elements to A Life Everlasting Sarah and Ross s experience as expectant parents is beautifully told, and is as moving as one could hope for There is enough stress entailed in having a first child I know But adding the harsh decisions that the couple had to face was truly a heavy burden Thomas s birth, short life, and passing are among the most moving passages I have ever read Have a box of tissues at the ready Sarah with hubby, Ross, and son, Callum from NBC NewsBut this is not, ultimately, a sad book It is a hugely hopeful and uplifting one And in Sarah Gray learning about what is possible, she educates us as well She pushed the boundaries of what the families of donors could know, which will benefit not only those families, but everyone When people are aware that their loved one s remains might be able to help others, are likely to choose donation instead of immediate burial And researchers facing a shortage of needed materials will be better able to move ahead with their work if people choose this option The way I see it our son got into Harvard, Duke, and Penn He has a job He is relevant to the world I only hope my life can be as relevant from the Philly.com articleGray adds the stories of some other people, including parents of donors, and a beneficiary of research that advanced life extending treatment as a result of having access to such donations Each is moving in its own way, and together, they support the message that many people need to be aware of the potential benefits to be had from donations of this sort Losing a child is all too common Unfortunate things happen, but there can still be some silver linings to even the darkest clouds The book touches on some closely related topics as well There are some inherent conflicts between the demand for transplantable organs and the need for many of the same organs for research Gray points out some of the advances that such research has produced, using donations like Thomas s She also notes in closing the emergence of new gene editing technology CRISPR that may offer science the ability to repair genetic damage before a child is born Gray s position is very much pro If you have the skills and the knowledge to fix these diseases, Gray said at a 2015 conference on gene editing, then freaking do it But opinions vary as to the overall risks involved in such tampering There is considerable controversy about how such tools might be applied I included a link about this in EXTRA STUFF.As a result of her quest and the ensuing attention she was paid by local and national media, Gray moved on to a new position She is now Director of Communications for the American Association of Tissue Banks She speaks regularly to professionals involved in organ donation She has included in an appendix a long list of relevant links for those interested in learning about organ tissue donation.You will be moved, learn a lot, and perhaps be inspired to consider becoming an organ donor yourself if you were not already Sometimes even the smallest of donations, resulting from the saddest of circumstances, can reap huge benefits A Life Everlasting is a gift to us all.Publication date September 27, 2016 Review posted July 15, 2016 EXTRA STUFF Links to the author s personal, Twitter, and FB pagesGray s TEDMED talkInterviews RadioLab Gray s Donation Thomas Gray lived six days, but his life has lasting impact from Philly.com Instead of thinking of our son as a victim, she said, I started thinking of him as a contributor to research, to science Science CDC link on anencephaly There are than a thousand a year in the USA There is no known cure or standard treatment for anencephaly Almost all babies born with anencephaly will die shortly after birth. On the new gene editing tool CRISPR Here is another on CRISPR, brought to our attention by GR pal Jan THE GENE HACKERS by Michael Specter in the November 16, 2015 issue of The New Yorker


  2. says:

    I received this wonderful book through the Goodreads giveaways when I read the blurbs for it, I was absolutely certain that, if I didn t win it, I would be buying it The story had me captivated from the start, following Sarah and her husband Ross through their meeting, courtship long distance , marriage and then the joy of joys, finding out they were pregnant The sorrow that quickly followed on their behalf, when the condition of one of the twins, Thomas, was discovered, then turned to amazement at the wonderful way that Sarah and Ross turned that sorrow into purpose, into acceptance and into something approaching joy, at the gift they were giving to medical science and research the goal, to spare another parent, another child, another life well, I have always been designated as a donor on my driver registratons, but, I made sure that my family were ALL immediately aware of my wishes should the unforeseen happen This book is a gift, Thomas brief life and death, and the aftermath, were a gift, and the author, Sarah Gray, is a gift to mankind and medicine may she and Ross be blessed many times over I passed this book along to my nephew s fiancee, who is active in the Donate Life program in OH her father went thru illness, transplant and death , and I definitely encourage and challenge anyone who reads this review to purchase the book when it becomes available, read it and become a donor or volunteer or activist this life, and this world are too short and temporary to take this gift to the grave To LIFE


  3. says:

    One of my selections for Best Non Fiction of 2016 A LIFE EVERLASTING is the story of Thomas Ethan Gray Thomas only lived for a few days, but he had and continues to have an impact in helping medical researchers around the world.Thomas story begins in a doctor s office, with the physician giving the expectant mother the bad news I m sorry to tell you that Baby A has a lethal birth defect Of the twins, one baby would be fine the other twin, Baby A, would not survive for long after birth For reasons unknown, Baby A, who would be named, Thomas, had developed anencephaly, a lethal condition He might not even survive birth.Of course, the news was devastating to the family, and especially to Sarah Giving birth to one healthy baby and one dead baby seemed like a sick joke. What did I ever do to deserve this Nevertheless, Sarah eventually adjusted to the tragic news, and decided to do something positive something that would create something good out of a tragic circumstance I decided that if Thomas s death was inevitable, at least it could be productive If our suffering helped mitigate the future suffering of just one other parent, then that was better than nothing Thomas did not die immediately after birth, but did pass just a few days after As the family planned, his organs were made available to different research organizations The story of Thomas didn t stop there, however Sarah decided to do something unique she decided to track down what happened to Thomas organs She wanted to see how they arrived, where they went, and how they were used.Not sure of what her response would be, Sarah began calling the labs, explaining that her son had donated organs for their research At the labs, the author was met with surprised, but kindly people who appreciated what her son had done Perhaps the most poignant encounter was when Sarah met the scientist who had used parts of Thomas eyes in important research Here, Sarah learned something surprising about Thomas donation It turned out that her son s organs were much valuable than I had even dared imagine His donation exposed me to a world of scientific and medical advancements I would not have even imagined before One researcher explained to Sarah how valuable Thomas eyes were Infant eyes are like gold to us Another scientist echoed the same thing about his retinas It had been the first healthy infant retina sample her lab had ever received, and it was vital to her work Thomas retinas were used in researching deadly cancer that affected young children.The author later received a wonderful gift Thomas corneas had been used in a research study, and the authors sent her a copy of the study.Through her journey, Sarah found new meaning in the brief life of her son Thomas life was than just a few short days He has a job He has coworkers He has colleagues He is a partner in their research, and relevant in this community Maybe, thanks at least in part to him, babies of the future wouldn t suffer from the awful affliction that took his own life I was so proud of my son I found A LIFE EVERLASTING to be a wonderful book, and a cherished tribute to this little soul who lived such a short life, but continues to help so many Here is how Thomas mother sums it up My son Thomas Ethan Gray donated his eyes, liver, and cord blood to medical research in his short but treasured life, he contributed to the advancement of modern medicine I only hope my life can be as relevant Amen to that.http www.bassocantor.com blog 2016


  4. says:

    I received an advanced copy of this book through a Good Reads giveaway This book is a very emotional ride for the first half The description of the author s experiences, which led to the writing of this book, are heartbreaking There is a lot of hope in the book Once the book gets beyond the story of Thomas s death, it is an interesting look into the world of organ and tissue donation for both transplantation and science The book concentrates on the research aspect of donations for scientific purposes This look takes the reader behind doors which are usually closed to the general public and makes a case for opening those doors It also brings up the argument for scientific research donations to take place I highly recommend this book to those who want to know where organ and tissue donations go.


  5. says:

    The author had a anencephalic child, one of identical twins the other is normal The affected child died as anencephalics do after birth The author went to great lengths to find meaning in her dying child s life, either through organ donation or some other means As it turns out, his tissues became parts of research projects through a research donation, not being suitable for donation At the time the author approved the donation, it was a fairly unusual event In the book she describes the her husband and her experiences of the short life of the affected child, and her quest to find out what happened to the research samples, to the extent of going to research institutes to meet the investigators involved As a scientist, I was gratified that her experiences were very positive both for her and her family and also for the researchers Personally, I also thank her for her book and her story, which will hopefully encourage others to participate in donation In the book, the author s story is interspersed with several other stories detailing participation in tissue donation and one story on a clinical trial The book got a little repetitious but the passion of the author for the topic certainly shines through.


  6. says:

    One of Sarah Gray s babies was diagnosed with anencephaly, a fatal birth defect Her brave memoir is a moving and honest account of her grief and donation of her baby s tissue for research purposes It is an eye opening account of how rare donor tissue is made eligible and allocated, as well as how desperately vital it is to develop medications and learn about other diseases Sarah follows the route of her son s donated tissue and develops poignant relationships with the grateful researchers at world class medical institutions While it is not uncommon for donor families to connect with organ recipients, the researchers Sarah met never received such request and identified the tissue by anonymous identification codes The clinical barrier of privacy and researcher distance is broken down, cultivating compassionate relationships which underscore the generosity and profundity of both the donation and research This is an important story and I have the utmost respect for Mrs Gray and her advocacy, but I sobbed through most of it.


  7. says:

    I thought this book was amazing To find out you were pregnant with twins only to then find out that one of them was going to die I could not imagine how that family felt Then to be faced with the decision they had to make is a parents worst nightmare Their decision to donate his organs to medical research so his life had meaning was so inspiring They turned something so heartbreaking into joy Which is a lesson we all need to learn and be reminded of This book made me very proud to be an organ donor My parents never wanted to be so when I told them that I was going to be they weren t very happy I think if people read this book they might change their minds I love the part in this book that said Donating had lifted my burden, not made it heavier I try to spend my life helping other people and knowing that when I die my organs could still help people is a piece of mind I will be recommending this book to my friends


  8. says:

    I enjoyed the first half of the book better which was of her memoir about having her son and then discovering how his body was used to help others At the end, it seemed to get rambling and less focused on the general field of organ donation and recovery for science and I felt the message was less strong.


  9. says:

    I received an ARC of A Live Everlasting from Shelf Awareness Thank you Emotional, heart wrenching, uplifting The author s ability to relate what happened to their family is overwhelming I appreciated how she moved from such a possibly horrible event into a quest of helping others While the detail about the organizations slowed the flow of the book, I think it was important to include.


  10. says:

    A heart wrenching story of a child s death and a mothers journey, first to find places for his organs and then to see the benefits that Thomas has brought into the world during his so short life Writing is good, but can get very technical at times Moving and inspirational.


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